A Cruel Disease – ALS
One of the great inequities in the world of medical research revolves around the lack of progress in finding some degree of cure for ALS (amyotrophic lateral sclerosis). I have cared for too many people with ALS over many decades, and there has been very little progress in research since I started my nursing career in 1978.
I have been re-awakened to the misery of ALS because a friend was recently diagnosed. I had a close friend who died of the disease about 10 years ago and it is a difficult experience for everyone involved in caring for a person for ALS. As much as we think we can empathize with someone who has ALS, we really will never know what having ALS feels like.



